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@contentandwell

@ethanmcconkey @betsy101 I know the frustration of not having a diagnosis having gone almost a year and a half without one for cirrhosis. I was having confusion episodes (along with other symptoms) so was sent to a neurologist. He was the first person who suggested liver problems!
I don’t know where you are, but what I learned from this was to not wait locally if a diagnosis is not forthcoming within a couple of months. I am about 55 miles outside of Boston, which is where I had a liver transplant, and now go there for everything other than my PCP.
I don’t think my sleep problems are as severe as yours, but I also very often wake in the middle of the night (bathroom calls) and don’t get back to sleep for hours, so I can sympathize with your plight. I don’t have “fight or flight” feeling, just an overactive brain spinning around. I will be very interested in hearing if a solution is found for you, please let us know how it’s going.
JK

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Replies to "@ethanmcconkey @betsy101 I know the frustration of not having a diagnosis having gone almost a year..."

@jk Thank you for your response. Not having a diagnosis is one of the hardest parts of a problem, physical or mental, and I'm glad you were proactive in getting help. Sounds like it saved your life. I live in a large urban area with plenty of medical help, although I belong to an HMO, so access to doctors can be limited. They are very good about testing for various things, and while this is good, it is often the end of the conversation if nothing shows up.
Overactive brain is definitely frustrating--I have tried meditation, listening to audible books, and some Yoga before bed. My sister swears by a little warm milk with cinnamon if she gets up in the night. 🙂 Hope you find something that works.