@ethanmcconkey @betsy101 I know the frustration of not having a diagnosis having gone almost a year and a half without one for cirrhosis. I was having confusion episodes (along with other symptoms) so was sent to a neurologist. He was the first person who suggested liver problems!
I don’t know where you are, but what I learned from this was to not wait locally if a diagnosis is not forthcoming within a couple of months. I am about 55 miles outside of Boston, which is where I had a liver transplant, and now go there for everything other than my PCP.
I don’t think my sleep problems are as severe as yours, but I also very often wake in the middle of the night (bathroom calls) and don’t get back to sleep for hours, so I can sympathize with your plight. I don’t have “fight or flight” feeling, just an overactive brain spinning around. I will be very interested in hearing if a solution is found for you, please let us know how it’s going.
JK