← Return to Adrenaline spikes: Med detective needed, award given

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@fuzzleguz

Hi - I relate to many of your symptoms and much of your journey. I have also had low thyroid, questionable hormonal imbalances (there seems to be a general lack of knowledge concerning estrogen/progesterone), 18yrs of unexplained infertility, metanephrines high but not high enough for pheochromocytomas, negative tilt table although flushing and heart rate elevated significantly, massive adrenaline surges during sleep, fatigue in day. An allergist placed me on h1&h2 histamine blockers - some symptoms decreased with this initially. I was given an unofficial diagnosis of mast cell activation disorder. I was bruising (hematology rule-out genetic clotting factors), had bone pain (rheumatologist ruled out arthritis) and very dizzy to the point of passing out. Randomly I had genetic work done which brought to my attention that I had genetic variants for Celiac Disease. After my aways sore gut got to the point of not being able to hold any food without it coming up or flushing out immediately I got a gastroenterologist consult. Two gastroenterologists suggest that I have Celiac and secondary lactose intolerance. Cutting out gluten and most dairy has nearly cleared my complaint lists (it has taken me 2-4months to clear out the damage from my gut). I am off of most every medication - yet, an adrenaline rush roared through me again a week ago at night. Not sure if this info helps. I would love to get more answers to this adrenalin problem as well. Let me know how you are doing. Best wishes!

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Replies to "Hi - I relate to many of your symptoms and much of your journey. I have..."

I was tested for celiac and it’s negative. I did just mention to my Dr that my bones hurt, especially my skull and facial bones. As well my feet have gone from size 6 to 7.5 and he said he’s sending me for a bone scan. I suffered from infertility as well and did invitro to become pregnant (hence my 2 year old) and I am now 39. Mine was due to tubal pregnancies though and removal of both tubes years ago. I am so tired all the time. I can’t stand feeling this way, and sleeping in avergae 2-4 hours per night only. I wish we could all get some answers