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Anyone Caring For Someone who Uses A Feeding Tube?

Caregivers | Last Active: Jan 27, 2020 | Replies (38)

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@gaybinator

Another Facebook page is Tubie Tips and Tricks

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Replies to "Another Facebook page is Tubie Tips and Tricks"

Hello @gaybinator, I do belong to many sites but Tubie Tips and Tricks is a new one on me. I did join and do a lil browsing. I found it very interesting and I could fit right in. My main site for the past 5 years has been "Oley Foundation-Inspire." Oley does have other sites such as Facebook but I've always preferred Inspire. Some Facebook sites may have a quicker response time than Inspire. I just like posting in multiple groups who have feeding tube patients attempting to reach as many patients worldwide as possible.
You mentioned your husband didn't want to use the pouch due to needing to be washed. We do use the pouch and some are getting old. I wash them by themselves in hot water, soap, & a lil bleach. Throwing them in the dryer they can really stick to one another. I guess I've got about 20 pouches.
How is your husband doing with his tube, feedings, etc.?

Fortunately, he has learned to use a small amount of water (because fluid restricted -dialysis) with each bite and he is eating moist foods like a horse. He had his last radiation treatment on his neck April 2017. It was the treatment which destroyed what remained of his salivary gland. He tried hard to eat, but could not. He reached 116 lbs in June 2017. The tube was installed on June 24. He is up to 140 lbs! This after we started using real food in the tube, as well as formula.

He ties his in a knot, and it works for him. Works for me that I don't have to wash it.