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Anyone Caring For Someone who Uses A Feeding Tube?

Caregivers | Last Active: Jan 27, 2020 | Replies (38)

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@gaybinator

@duvie @coleenyoung @adriennef @jano
My husband lost his saliva glands to radiation, so the tube will be permanant. We have been fine with the tube just hanging and looped around itself so it doesn’t hang below his shirt. We clean around the stoma with gauze dampened with some wound cleaner, then cut a “flower” from a Telfa pad to put behind the bumper. (This was the only picture I had! I drew a gasket on it because we were talking about blowing a gasket. It was funny at the time.)

The belt has a slit in the back to put the tube through, then you coil it and enclose in the Velcro pouch. It is available from Amazon and other places. My husband has not used it. It would have to be washed.

Some people use a lanyard for support.

I highly recommend Adult GTube Feeding Facebook page to you. People from around the world share their problems and solutions for g and j tubes. You will find that Real Food Blends (RFB) is frequently mentioned. They are pouches of real food for tube-fed people. It is covered by Medicare as formula is. I think it is absurd that doctors push the formulas when the tube is just a method to bypass the mouth. What doctor would recommend that someone eat exactly the same thing every day? Yet many are reluctant.

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Replies to "@duvie @coleenyoung @adriennef @jano My husband lost his saliva glands to radiation, so the tube will..."

I have a GTube and I dont use anything to cover it. Just wash it with the soap water when I shower, dry the skin carefully and attach the end to my bra or with a silicone tape. At the beginning I used the pouch and some slit gauze but the doctor told me just to wash it in the shower and it is working great. Hope this helps.