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@yoanne

hello eileena,
I forgot to mention in my post, that I had the first one at the age of 20, now I am 73 years old, I still have them, actually one hour ago it happened. There is no headache afterwards. At the age of 54 I had my first migraine headache, without an aura, like the scintillating scotoma. There is no connection between the headache and scint. scotoma, they come apart from each other . 2016 I had a heart operation (mitral valve reconstruction- minimal invasive), afterwards the number of the visual problems went up, sometimes 4 or 5 after each other. Nobody could tell me the reason. The situation now is, nearly every day I have the scotoma, sometimes very short, only 5 minutes, other full until the edge - 20 minutes. Migraine headache once a week. I am fed up with it. All the profylactic medications did not work. So I decided to make an appointment in a special migraine/headache department of an university clinic /Cologne- Germany. I will go there 16 april. , earlier not possible.
so, you know my story now. I am not worried about the scotomas.But I hope to get an answer !

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Replies to "hello eileena, I forgot to mention in my post, that I had the first one at..."

yoanne,

I'm so sorry that you have suffered through all those problems.

I'm really glad I learned the actual name of this condition and only wish my doctors had called it the two I could learn about it.

One thing I learned recently is that they actually originate from the back of the brain. I have no idea, but know I had them badly until 5 years ago and had the ablation that caused my heart to function better.
https://medium.com/@Treatheadaches/how-to-get-relief-from-scintillating-scotoma-1d790a772b6c