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Heart Rhythm Conditions – Welcome to the group

Heart Rhythm Conditions | Last Active: Nov 15, 2023 | Replies (874)
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@eileena

Thanks @yoanne. Never knew the actual nomenclature, only "ocular migraines". That is exactly what mine were. I no longer have to endure them.

When I went on the web I saw some persons had taken the time to make gifs of the visual effect. Mine looked like crescents of leaded glass but were not like stained glass as they had no color effects. Began having them around the time I turned 43 and had great amounts of stress coming from supervisor and the effects of caring for a disabled teen who even at age 41 needs care that due to age (I'm now 70) and heart problems is more difficult for me to provide.

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Replies to "Thanks @yoanne. Never knew the actual nomenclature, only "ocular migraines". That is exactly what mine were...."
yoanne | @yoanne | Feb 14, 2020

hello eileena,
I forgot to mention in my post, that I had the first one at the age of 20, now I am 73 years old, I still have them, actually one hour ago it happened. There is no headache afterwards. At the age of 54 I had my first migraine headache, without an aura, like the scintillating scotoma. There is no connection between the headache and scint. scotoma, they come apart from each other . 2016 I had a heart operation (mitral valve reconstruction- minimal invasive), afterwards the number of the visual problems went up, sometimes 4 or 5 after each other. Nobody could tell me the reason. The situation now is, nearly every day I have the scotoma, sometimes very short, only 5 minutes, other full until the edge - 20 minutes. Migraine headache once a week. I am fed up with it. All the profylactic medications did not work. So I decided to make an appointment in a special migraine/headache department of an university clinic /Cologne- Germany. I will go there 16 april. , earlier not possible.
so, you know my story now. I am not worried about the scotomas.But I hope to get an answer !

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