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Mike (@meppard)

Time misused

Neuroendocrine Tumors (NETs) | Last Active: Jul 31, 2018 | Replies (11)

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@linnythepoo

Hi @meppard ,

I am hoping to get into a Rova-T clinical trial too. I have periampullary cancer with mets to liver. Were you tested for DLL3 protein?

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Replies to "Hi @meppard , I am hoping to get into a Rova-T clinical trial too. I have..."

Yes, I was starting 2/7

Hello @linnythepoo

I’m glad that you joined our discussion. If I may ask, how long ago were you diagnosed? Have you had any surgeries or other treatments?

I look forward to hearing from you.

Teresa

Diagnosed April 2018, have had six rounds of chemo, starting on oral chemo tomorrow , for whatever it is they saw on the head MRI.

Lost my place in the Rova T clinical trial, which has devastated me. Could have shortened my life significantly.

@meppard Hello Mike:

I understand your devastation! I do hope the oral chemo works well on this new lesion.

I look forward to hearing from you again.

Teresa

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