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Mike
@meppard

Posts: 8
Joined: Nov 11, 2017

Treatment for Stage IV Ampullary Cancer

Posted by @meppard, Dec 1, 2017

I have stage IV cancer of ampulla of Vater, mets to liver. It is rare because it is small cell. Have had my regimen of chemo, would like surgery to remove tumor, hippec after. Ablation of liver tumors. Pinpoint radiation.

REPLY

Hello Mike, @meppard

I appreciate your posting a bit more about your disorder and treatment. It sounds like you have had a lot of care and treatment so far. You mention “hippec.” As I’m not familiar with that, please explain a little more about that.

If you are comfortable sharing more we would be interested in knowing what symptoms led to this diagnosis and what tests were used for diagnostic purposes. Given the location, I’m thinking that you probably had an upper endoscopy?

As you mentioned in your first post that you were interested in a second opinion at Mayo, are you planning on scheduling an appointment?

I certainly wish you well as you continue to seek treatment.

Teresa

@hopeful33250

Hello Mike, @meppard

I appreciate your posting a bit more about your disorder and treatment. It sounds like you have had a lot of care and treatment so far. You mention “hippec.” As I’m not familiar with that, please explain a little more about that.

If you are comfortable sharing more we would be interested in knowing what symptoms led to this diagnosis and what tests were used for diagnostic purposes. Given the location, I’m thinking that you probably had an upper endoscopy?

As you mentioned in your first post that you were interested in a second opinion at Mayo, are you planning on scheduling an appointment?

I certainly wish you well as you continue to seek treatment.

Teresa

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I had gerd for years so I had EGD’S a lot. Had a cholecystectomy 5 years ago. Had ercp 2015 for sludge. Had another in sept of 2016. April of 2017, was jaundiced had ercp with stents. Biopsies came back small cell cancer, very rare. ESU confirmed Mets to liver. Have been through regimen of chemo with significant shrinkage of tumors. Trying to get into Rova T clinical trial at Barnes. I’m a 40 plus year OR Nurse, so I realize what’s going on. I will accept nothing but a cancer free report. Liver ablation, removal of cancer at ampulla of vater. Hipec procedure, radiochemo or what ever treatment it takes. That’s why I feel that the Mayo is best for me.

@hopeful33250

Hello Mike, @meppard

I appreciate your posting a bit more about your disorder and treatment. It sounds like you have had a lot of care and treatment so far. You mention “hippec.” As I’m not familiar with that, please explain a little more about that.

If you are comfortable sharing more we would be interested in knowing what symptoms led to this diagnosis and what tests were used for diagnostic purposes. Given the location, I’m thinking that you probably had an upper endoscopy?

As you mentioned in your first post that you were interested in a second opinion at Mayo, are you planning on scheduling an appointment?

I certainly wish you well as you continue to seek treatment.

Teresa

Jump to this post

Mike, @meppard

Being a nurse does make you very knowledgeable – I’m glad that you are pursuing the best treatment possible. My first NET was discovered the same way, through a routine EGD because of a history of GERD. After the first one there were follow ups on a regular basis.

You must be pleased to have, as you say, to have a “significant shrinkage of tumors.” But I can certainly understand your desire to be cancer-free.

We look forward to following your journey to wellness. Will you keep in touch with us?

Teresa

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