Replies to That does sound hard to have a meningioma and afib discovered all at once, @alex31. A…

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@lisalucier

That does sound hard to have a meningioma and afib discovered all at once, @alex31. A lot to process at the same time. Since you were talking in your second post about following, or watching your meningioma, instead of immediately intervening, I moved your post here where you were posting before where others are talking about watching a meningioma.

Hoping that some other members here and from other discussions may know something about anticoagulant safety while you have a meningioma and whether it could prompt bleeding. @johnbishop may have some thoughts for you, as may @deblee @sanderjakidd @averagewoman @pegorr. They may also have had experience with the decrease in the sense of smell you are talking about.

Have you gotten a chance to talk to the pharmacist about your concerns related to the anticoagulant and the meningioma that was discovered, alex31? If so, what did he or she say?

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Replies to "That does sound hard to have a meningioma and afib discovered all at once, @alex31. A..."

averagewoman | @averagewoman | Feb 10, 2020

I do not know anything about anticoagulants.

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alex3l | @alex3l | Feb 11, 2020

Thanks Lisa. I'm not sure how this discussion group works e.g. meninigiomas vs watching meningiomas, I'm not even sure that I am replying right. Yeah, it was pretty shocking meningioma on MRI Thursday and the next day atrial fib on an echo. The neuro surgeon I saw at Stanford didn't know about an increased risk of the meningioma bleeding on anticoagulation. The cardiologist asked some Stanford neurologists and neurosurgeons and told me that the consensus was that it is OK to anticoagulate meningioma patients. I pick up the med tonight. I'll ask the pharmacist. One thing for sure, there is a definite risk of a throboembolism to the brain from afib, so I'm going to do it. They are going to try to cardiovert me in a couple weeks and if it is successful, I may not need long term potent anticoagulants. Unfortunately cardioverion often fails or is temporary.

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