1. < Brain Tumor

Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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cyndymc | @cyndymc | Dec 31, 2019
In reply to @lisalucier "Hi, @cyndymc - I'd like to tag @jill333 @donald1214 @gloriajean @robinem so they can share some..." + (show)
@lisalucier

Hi, @cyndymc - I'd like to tag @jill333 @donald1214 @gloriajean @robinem so they can share some of their experiences with meningioma as well as whether they may have had a tingling sensation in the forehead and right eye area.

Is surgery being recommended for you at this time, or is the doctor also thinking watching and waiting is best? Did your neurologist have any medication to offer to alleviate the symptoms?

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Hi , I am watching and waiting, MRI in 6 months, trying Gabapentin for symptoms , not helping.

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cyndymc | @cyndymc | Dec 31, 2019

The benefit of waiting is , I am told this may never grow, and brain surgery has many risks.

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2 replies
cyndymc | @cyndymc | Dec 31, 2019
In reply to @deblee "I also have a meningioma that is 2.4 cm since last scan in October. I am..." + (show)
@deblee

I also have a meningioma that is 2.4 cm since last scan in October. I am having the same symptoms as you but also balance problems and numbness in feet. Doctor recommended Gabapentin but don't want to take it. My NS says the tingling numbness in forehead, eye and now lip is not connected to the meningioma. He is suggesting the watch and wait, too. I have another MRI in January. Good luck to you.

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Hi if the tingling is not due to meningioma, then what is the cause?

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deblee | @deblee | Jan 1, 2020
In reply to @cyndymc "Hi if the tingling is not due to meningioma, then what is the cause?" + (show)
@cyndymc

Hi if the tingling is not due to meningioma, then what is the cause?

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They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

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3 replies
cyndymc | @cyndymc | Jan 1, 2020
In reply to @deblee "They are not sure but the NS sent me to an ENT who could also not..." + (show)
@deblee

They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

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I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is your tumor located?

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1 reply
deblee | @deblee | Jan 2, 2020
In reply to @cyndymc "I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is..." + (show)
@cyndymc

I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is your tumor located?

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It is located in the left tentorium. Where is yours located?

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cyndymc | @cyndymc | Jan 2, 2020

right prepontine cistern, I am told not a great place for surgery due to busy location, but is operative if needed.

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cyndymc | @cyndymc | Jan 2, 2020
In reply to @deblee "They are not sure but the NS sent me to an ENT who could also not..." + (show)
@deblee

They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

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I agree, no surgery unless absolutely necessary, how old are you.

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1 reply
deblee | @deblee | Jan 3, 2020
In reply to @cyndymc "I agree, no surgery unless absolutely necessary, how old are you." + (show)
@cyndymc

I agree, no surgery unless absolutely necessary, how old are you.

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I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

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1 reply
cyndymc | @cyndymc | Jan 3, 2020
In reply to @deblee "I am 71 and mine is not in an ideal place for surgery. but doctor said..." + (show)
@deblee

I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

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It sounds like you and I have close diagnosis, I am 62 looking forward to retirement in a few years. Do you live in AZ?

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