Hi, @leftylucy - I, too, hope @bjmiller @hopeful33250 @jshdma @coolnacart1892 @maxaz1 @sainath @patch @steeldove @orval will return and share their or their loved one's DBS stories, when they have a moment.

Hello @leftylucy,

In our Connect discussion, the only person I know of who had DBS is Walt and you have read about his experience.

I would encourage you to look for a PD support group in your area in order to meet others who have also had DBS. While I've never had DBS myself I have talked with many people who had DBS through a local support group. Their experiences and results were unique and as different as the individuals.

Here is a link to the Parkinson's Foundation, https://www.parkinson.org/. There is a helpline listed and you may be able to call and get information regarding support groups in your area. You might also talk with your hospital (is it Mayo?) and see if they have others you could talk with. You can also google "Parkinson's Support Groups" and see what comes up.

You don't mention what state you live in, however, if you are in the Michigan area there is an organization called the Michigan Parksinson's Foundation with many support groups all over the state. There may be something similar in the state where you live.

Do you have a date in September for beginning the DBS procedure?