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Looking for Information on Deep Brain Stimulation
Parkinson's Disease | Last Active: Dec 31, 2019 | Replies (14)Comment receiving replies
Hello, @leftylucy - glad you've joined Mayo Clinic Connect. You may have noticed I moved your post to this existing Deep Brain Stimulation (DBS) discussion so that those interested in this topic can convene in the same place. Simply click VIEW & REPLY in your email notification to get to your post.
With a deep brain stimulation coming up in September, it makes sense to talk to others who may have had the same type of procedure and get their input.
I'd like to call on @bjmiller @hopeful33250 @jshdma @coolnacart1892 @maxaz1 @sainath @patch @steeldove @orval for their input on whether they (or a loved one) had DBS asleep or if the Boston Scientific DBS device you mentioned was (or will be) used in their case.
Will you share a bit about the symptoms that prompted your doctor to recommend a DBS? How are you feeling, leading up to it?
Replies to "Hello, @leftylucy - glad you've joined Mayo Clinic Connect. You may have noticed I moved your..."
Hi Lisa I would love to hear from the people you listed and anyone else regarding DBS. Hope to hear your stories.
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I was diagnosed with PD 9 yrs. ago. I had a tremor on my left side. Soon after I developed foot drag on the same side. My symptoms have progressed to include dyskinesia, leg pain - dystonia? I take 1 - 25/100 C/L 6 times per day. I am pursuing DBS at Mayo and Dr. L was kind enough to agree to use the newer Boston Scientific and implant it while I am asleep.I would love to hear from anyone who has used the Boston or had it done asleep. My surgery is planned for Sept.