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Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (514)

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@jerbobs

For me it has to be 48 wks interferon and ribavirin. It was only thing different at the time. I have 23 different comorbidities that keep increasuing. Im 11yrs post tx.
Fibro. Feels as though ive been forgotten about.
In the 11 yrs how much money has been made. It makes my blood boil. Oh ya . Neuropsychiatric problems. My rage has grown. It was one of first side effects.

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Replies to "For me it has to be 48 wks interferon and ribavirin. It was only thing different..."

Hello,
I am notified via email when there is comments made on this website.

I could not help but respond.

There is an ocean of people suffering. There is no help.

I would be curious to find out how many suicides have occurred from the aftereffects and misery of having taken this medicine.

As recently as last Monday I commented the same to a doctor, he looked at me like I was crazy.

I am dealing with so very many side effects it is a struggle to live every day. Last night I could not get to sleep because my scalp itches so bad, terrible lesions all over my scalp, the doctor called it tinea amiantacea.

They say I developed Sjorgren's from a year of treatment in 2008, but due to insurance coverage no one is helping. There really is no help for us.

Sorry to say. I no longer trust doctors, I see a naturopath now for care.

Take care, sorry this happened to all of us!

And, I would also like to add that there is help and curiosity behind why people suffer from drugs given for other illnesses. But people associate Hep C as a drug addict's virus.

I received 7-8 pints of blood from people unknown in 1976.

But the point is, it should not matter how we got Hep C.

I feel this is one of the reasons people do not care. I get angry when I see other people getting empathy/sympathy for their grueling drug treatments. It has never been there for us.