Hi I'm 62 now and live in UK.
In 1988 I had NHS blood transfusions for haemorrhage during delivery. Several months later I was admitted to hospital with severe jaundice. I was discharged after a week of tests and rest with a diagnosis of ' you have a non A non B virus and like the flu it will pass'.
As a Mum of three and a full time Nurse my life was very busy but I was always so tired my eyes had a yellow hue and black circles even now. The numerous visits to the GP over the years just resulted in more iron tablets not to mention the horendous heamorrhage type periods each months . I was never offered any medication for that I had to use baby disposable nappys. Yes its embarrassing to discuss but that's a part of my life. I also suffered two miscarriages at around 16 weeks after the 1988 birth. No investigation was made and with no babys to see ?there was no closure.
Life continued but my health was decreasing with terrible pain in my abdomen that made me pass out sometimes migraines tiredness etc. In 1999 I had a grand fit and a benign brain tumour was found so in 2000 that was removed. Recovery from that was slow but i gradually returned to work. The pains in my abdomen were getting more frequent and when i collapsed at work in 2002 i was rushed to theatre with suspected appendicitis. Instead I had my gallbladder removed there were no stones but I was told by the surgeon ' it's not an important organ anyway'!!.
In 2003 a blood test showed me as HCV positive and it was traced back by my specialist to my 1988 transfusions.
My liver was in stage 3 level damage but luckily not at the necrotic stage.
I was too I'll for treatment but after rest and medication my treatment of Interferon/Rabivirin began in Autumn 2005.
Although after 9 months and a massive decline in my health the treatment cleared the HCV.
My hair had fallen out and my health was very poor with constant tiredness foggy ness aching bones and joints. Sleep never eased the tiredness I couldn't continue to work and i had ' forgotten' so many things my work procedures and even peoples names and family members events etc etc. I began to think i was going insane. I became like jeckyl and Hyde impossible to be around and I couldnt cope with other people. My partner had left years back my older children had fled the nest but my younger daughter still lived with me and with no income we had to live on 58 pound a week benefit. Eventually we were homeless as our home was repossed.
My ill health remained and after a final attempt at returning to work I was given an early retirement on grounds of CFS and 'Epilepsy'. (I have not had a fit since 2000 which was post op trauma induced)
My youngest daughter moved in with her boyfriend all my furniture etc was given away and I moved into a room.
Fast forward now I'm still here I survived I'm lucky and after several moves over the years I'm blessed with Grandchildren and luve near to my daughters.
Last year I was diagnosed again officially with CFS/ME and my GP signed a note to say it was more than likely caused by my HCV

Hi Iv just found this website and not sure what I’m doing 🤦‍♀️ I was diagnosed with ET essential thrombocytopenia back in 1998 and was put on peg interferon I was on it once a week for at least 15 years I ask to come of it about 8 years ago and have health issues ever since I have now been diagnosed with Fibro and have bad vision problems and other issues as there ever been any lawsuits bought forward or do you have any links for more info before I go back to my doctors.
Denise