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Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (515)

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@bulldogmama4

Just posted more. He doesn’t use computer because his hands swell to much but I do read post to him. He had treatment 15 years ago and had symptoms soon after that now have gotten much worse. VA put him on about 10 different meds and almost killed him . All for behavior and depression ( not Real problem ) . He finally wouldn’t go back. He has been to many docs and had many test but besides his back issues no on believes him. Now things are so much worse. He eats very little because of gastro issues and bloating. Any helpful info is appreciated before we look for new docs.

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Replies to "Just posted more. He doesn’t use computer because his hands swell to much but I do..."

I really feel for him, I have constant stomach problems too, where one dr. Had to go in and get rid of the sludge, whatever that means.

My main complaints from 12 months of treatment hell are that I no longer wake up feeling good, even when I had hep c morning was always a good time for me.

Has your son ever had a bone density test to find out how the treatment affected his bones? If not, he needs to find out.

An eye exam should be done too.

It is unfortunate that I do not have a computer right now, it is so hard to type on this phone. I will be getting a computer in another month so it will be easier.

Also, there was a handbook that the va doctor’s were to follow during treatment. He should have had intermittent heart exams, bone density tests, eye exams, etc. throughout his treatment. Was he given these tests to protect him? This is how I found out how really negligent the doctor was who treated me, not once was I referred for any test of any kind while they were pocketing 100,000.00, that was just the amount they got for treating one person. They didn’t care about me, they only cared about the money.