Connect
← Return to Post Interferon Syndrome
Discussion
Comment receiving replies
Hi, thanks for replying to my post. I am in the process of my doctor trying to figure out why I am having so many neurological symptoms that have been getting worse over the last few years. Ironically, the doctor discovered I had low b-12 but apparently not low enough to be symptomatic, then they found a cyst in the left frontal cortex of my brain but it is supposed to be asymptomatic as well!! Then what is cause my symptoms!!!! When everything first started, I was told I would be fine once treatment ended! I also get told constantly that it is just getting old!!!! Before the treatment I had perfect vision, I was active and rarely had pain in my body. Since then I can barely walk when I first get up from either sitting or laying down. Luckily, I can still walk ok after I work out the stiffness, but even my gait has changed. I realized the treatment caused long-term issues because I had so many behaviors permanently change after. It sounds strange but I never slept on my back until the treatment, I always slept on my stomach and that changed. Also the foods I liked changed completely, I now eat certain foods that I never ate and don't eat ones that I loved! If the treatment can force a change in my physiology than I am sure it is capable of doing lots of other damage. When I try to talk about to anyone else they just think I am being over dramatic. I turn 50 this summer coming but most of the time I feel like I am very old!
Replies to "Hi, thanks for replying to my post. I am in the process of my doctor trying..."
I noticed a big difference in taste too. I am in pain all the time, mainly my legs. During treatment my left leg had a buildup of fluid on the knee, they didn’t know what it was. I now need a knee replacement where it occurred. I have osteopenia from treatment and I know it’s from treatment because five yrs previous I had a bone density test and was told I had the bones of a 20 ur old. I also get scans all over my head, developed eye damage, etc etc. it is so hard living because unless you do the 12 month long treatment someone can never know or understand what it is like to feel this bad, I don’t even sleep. It is so outrageous that the doctors can pocket their money and walk away, the ones that did this to us should have to pay in some way.
has anyone ever checked ur magnesium?
Connect
The main damage is to the brain, everything else follows. I have an elephant sitting on my legs every day. Previous to treatment I enjoyed a good life and felt good. I only wish I would not have trusted them and delayed treatment. Isn’t it funny that now they tell me I no longer have cirrhosis, and everything is back to normal. They don’t have to deal with me now. If that is true why do I have liver hands. The medicine did a lot of nerve damage or I would not have an elephant sitting on my legs. The older you get the more they will love telling you it is from old age. I take vitamins only, rarely do I go to a doctor. The only ones I trust now are naturopaths.