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Post Interferon Syndrome

Infectious Diseases | Last Active: 4 days ago | Replies (515)

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@sueleerock

I too was dropping things all the time, that comes and goes. I believe the medicine may have done nerve damage too. I shrunk 3 inches on that medicine. No kidding!!!!!!!!!!! I continually asked the nurse why my legs were hurting so bad throughout treatment, now I know why, it was actually frying my leg bones. Creepy thought. The pain was severe. And the pain is with me each and every day and I was treated in 2008. I had a good life before interferon, walked everywhere, now it is too painful to walk anywhere.

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Replies to "I too was dropping things all the time, that comes and goes. I believe the medicine..."

Hi, thanks for replying to my post. I am in the process of my doctor trying to figure out why I am having so many neurological symptoms that have been getting worse over the last few years. Ironically, the doctor discovered I had low b-12 but apparently not low enough to be symptomatic, then they found a cyst in the left frontal cortex of my brain but it is supposed to be asymptomatic as well!! Then what is cause my symptoms!!!! When everything first started, I was told I would be fine once treatment ended! I also get told constantly that it is just getting old!!!! Before the treatment I had perfect vision, I was active and rarely had pain in my body. Since then I can barely walk when I first get up from either sitting or laying down. Luckily, I can still walk ok after I work out the stiffness, but even my gait has changed. I realized the treatment caused long-term issues because I had so many behaviors permanently change after. It sounds strange but I never slept on my back until the treatment, I always slept on my stomach and that changed. Also the foods I liked changed completely, I now eat certain foods that I never ate and don't eat ones that I loved! If the treatment can force a change in my physiology than I am sure it is capable of doing lots of other damage. When I try to talk about to anyone else they just think I am being over dramatic. I turn 50 this summer coming but most of the time I feel like I am very old!