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Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (515)

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@victimofinterferon

I to have been dealing with this for 8 yrs and the sad thing is, the doctors are covering for each other. The pharmacist industry is a very filthy rich business. The government doesn't care what happens to the people. FDA is the biggest joke, there is. NO help for us victims. I can't even get proper diagnosis. My feet flair up, making it Impossible to walk and I have been living on government assistance and can't even get disability for my problems. I don't care about a government, that doesn't care about us. I to, wish I was dead.

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Replies to "I to have been dealing with this for 8 yrs and the sad thing is, the..."

I would get a different doctor until you can get the help you need for a proper diagnosis..the system doesn't partner us well...so you have to fight to get the help you need...hang in there..we all deserve to be treated with dignity, not dismissed...

I agree I was treated in 2002 in pegiterferon rebvarin for 7 months the side effects were grueling and felt like I got hit by a Mack Truck within a month my eyes were effected blurred vision ( I never had eye problems prior to that ) I started to get muscle pain in hips and lowerback( was told by Dr it was Arthritus and Fibromyalgia that Al's ok contributed to my exhaustion Heck I was then only 52 very active prior my platelets got too low and was taken off of interferonan and told viral load was very low cured but the side effects continued and got worse now 20 years later I am recovering from Venous stasis ulcer from Venous Insufficiency Disease I developed spider and varicose veins while on Interferon treatment and now causing these ulcers on ankle Seeing Vascular Surgeon in a week to treat diseased veins and oh The Hepatitis C decided to come back But I have to say after others on hear have shared their stories I feel quite Blessed to not have more issues with my Health Thankyou everyone for sharing