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Post Interferon Syndrome

Infectious Diseases | Last Active: Oct 7 9:13am | Replies (536)

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@seakay

There are many ways to mitigate the suffering we are experiencing however, to my knowledge, there is no cure. Have you found a general practitioner who is sympathetic to your condition, knowledgable about ME/CFS? I have consulted with numerous specialists around the world and I can assure you that not one of them was able to give me the specific attention required to best treat me! I have had to piece together my own treatment and life style plan, taking from each of them what best worked for me. The basis of my approach is to support my metabolism, reduce the effects of PEM (post exertional malaise) and aid my sleep. I have relied on Dr. Rawls´s Vial Plan supplements and have been taking them for the last three years. I recommend you check out his book. I believe it can be downloaded for free. Lyme disease causes very similar symptoms as ME/CFS. I also found that antiviral medication has been helpful. I use various pharmaceuticals to aid my sleep. Tricky business! Klonipin is very addictive and Ibuprofen PM is terrible for the liver. Neither works if used exclusively over a long period of time. I alternate with other pharmaceuticals so not to become reliant on one.

Please read my earlier posts. You might find something there to assist you.I am happy to help to on your path to a better life. In any case, please know that you are not alone.

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Replies to "There are many ways to mitigate the suffering we are experiencing however, to my knowledge, there..."

Thank you so much for sharing all of the things you have tried and do to make this better. I will read more about the things you have tried and look at your past posts. Thank you so much, it helps to feel not so alone in this puzzle.