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Post Interferon Syndrome

Infectious Diseases | Last Active: 33 minutes ago | Replies (515)

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@elisabethclure

I just discovered this site. I did year long peg interferon, ribavirin in 2003. I have been sick every since. I have chronic fatigue syndrome. I cannot work anymore. Is there anything I can do?

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Replies to "I just discovered this site. I did year long peg interferon, ribavirin in 2003. I have..."

There are many ways to mitigate the suffering we are experiencing however, to my knowledge, there is no cure. Have you found a general practitioner who is sympathetic to your condition, knowledgable about ME/CFS? I have consulted with numerous specialists around the world and I can assure you that not one of them was able to give me the specific attention required to best treat me! I have had to piece together my own treatment and life style plan, taking from each of them what best worked for me. The basis of my approach is to support my metabolism, reduce the effects of PEM (post exertional malaise) and aid my sleep. I have relied on Dr. Rawls´s Vial Plan supplements and have been taking them for the last three years. I recommend you check out his book. I believe it can be downloaded for free. Lyme disease causes very similar symptoms as ME/CFS. I also found that antiviral medication has been helpful. I use various pharmaceuticals to aid my sleep. Tricky business! Klonipin is very addictive and Ibuprofen PM is terrible for the liver. Neither works if used exclusively over a long period of time. I alternate with other pharmaceuticals so not to become reliant on one.

Please read my earlier posts. You might find something there to assist you.I am happy to help to on your path to a better life. In any case, please know that you are not alone.

Hi!!! I I have cfs and fibro also. i can not work or on most days hardly do anything or i will crash...no energy n have to rest most of the day. this is horrible to live this way. i so glad u found this site...it give us a little validation that we r not nuts