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Post Interferon Syndrome

Infectious Diseases | Last Active: Oct 7 9:13am | Replies (536)

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@zak

Thank you for sharing your experience. I completed treatment in 2014. My life has never been the same. Interferon/ribovarin has done more damage to my mind, body and emotions than anything else i have ever experienced. It's a personal holocaust only known by those who have been led down this dark tunnel of false hopes. The true hope was to clear the virus and have improved quality of life - health, vitality, opportunities, freedom. What i ended up with was severe and chronic suicidal depression, skin problems, gut problems, immune problems, hypersensitivity to drugs/chemicals/noise/smells/ light etc, chronic fatigue, brain fog, flu like symptoms after stress or exertion, loss of income, connections and thousands of lost dollars trying to treat post inteferon illnesses. I had to do a lot of work to let go of the resentments towards the staff who treated me - how could anyone knowing the side effects ever dispense such brutal and barbaric drugs. God forgive you and the drug companies. Ive lost my life, a successful career, hopes and dreams. I was always a go-getter...active and achieving. Now, my quality of life is lower than ive ever known or could conceive. I still regret i ever agreed to take this drug. Money could never compensate the anguish and suffering it has caused. If there were to be any compensation, its use would be to help access and pay for all the medical treatments to deal with long term side effects. I saw a holistic dr in 2017 for cfs. When i told her i was on inteferon, she said :"no wonder you're fatigued - didnt you know that drug causes wide spread organ damage". Like has been said, most Drs aren't interested in us. But there is a justice in the end, some where, someplace. We are not forgotten. There is One who sees all. May the Force be with you and strengthen you my fellow sufferers. We will have our day in the end.

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Replies to "Thank you for sharing your experience. I completed treatment in 2014. My life has never been..."

Hi, I still cry when i read these. I had treatment in 2011 n has destroyed my life. PLS EVERYONE...U HAVE TO TURN THESE DRUGS IN THE FDA, THEN CONTACT MERCK AS I AM DOING!!! Pls contact me as i will never give up the fight...i was a RN n have a MPH n now hardly able to function on a daily basis...i feel like i am slowly dying everyday while losing my mind.