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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@joli

Colin, I am miserable too. The suffering is unbearable. I took peg interferon from 2002-2003 for the 48 weeks. I have major depression and anxiety that has dominated my life for 17 years. I would take the virus back any day instead of this awful life I endure. I cry everytime I hear someone's story because doctors, psychiatrists, specialists, friends, family etc. tend to think it's all in my head. Then I see my own thoughts in other people's words. How could they have allowed such a toxic drug to be given to any living being? I wouldn't wish this medicine on a serial killer.

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Replies to "Colin, I am miserable too. The suffering is unbearable. I took peg interferon from 2002-2003 for..."

Agreed. Nice to see some activity. For those of us with severe reactions time doesn’t heal all wounds, if anything it gets worse. So I just don’t talk about it. When I get a really bad couple of days in a row I try to avoid people as much as possible. Sometimes my wife picks up on it and asks what’s going on. I can’t explain it, my brain just goes bad, or worse than usual, everything is black.She tries to help, “look hw much you have to grateful. She’s right, but it doesn’t work that way. My son is handicapped, he doesn’t talk, ask questions or judge. We spend a lot of time walking around and I can relax. That helps a little.