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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@colino

Thank you. The doctors say the main thing is to start getting better now. The cause of your depression is secondary to your getting better. It’s not secondary to me. Also, “ Oh, I don’t know,what you’re talking about, but that was so long ago. Can’t you just get over it.” No I can’t just get over it. Time doesn’t help. I always feel like I stopped treatment yesterday even though it’s been 20 years. I can eat, I don’t have flulike symptoms anymore and with medication I can sleep, but the bad thoughts are constant. The few people I mention it to say “Everyone has days like that”. No they don’t. Thoughts of suicide plays like a loop. Over and over. Sometimes for days. I look at at some stuff on line and the questions are like “ How many times have you thought of suicide in the past week, once, twice? Or more. How about 1,000? It’s ongoing, it never stops. The medication allows me to function, but that’s about it.
Hear “Just be glad your cured”. No. I’m not. Interferon is the gift that keeps giving. Anyway, I don’t talk about it anymore, to anyone.

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Replies to "Thank you. The doctors say the main thing is to start getting better now. The cause..."

Colin, I am miserable too. The suffering is unbearable. I took peg interferon from 2002-2003 for the 48 weeks. I have major depression and anxiety that has dominated my life for 17 years. I would take the virus back any day instead of this awful life I endure. I cry everytime I hear someone's story because doctors, psychiatrists, specialists, friends, family etc. tend to think it's all in my head. Then I see my own thoughts in other people's words. How could they have allowed such a toxic drug to be given to any living being? I wouldn't wish this medicine on a serial killer.

Not 15 minutes in a day that it doesn't cross my mind. But I can't. I have kids, adults but still they're mine. My dad checked out early on me when I was 11. I won't do the same. But I definitely know your pain. Someone has to be held accountable for this.
growly.