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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@bbsheffield

About 10yrs ago, I read an abstract of a study done of a few thousand patients who had gone through long-term treatment with Interferon. In it, they reported that as many as 40% of these patients had a "syndrome" exactly like what we have. I was astounded! For many years, I thought I was the only one... or that it was either several conditions I had developed over time, or something entirely unrelated to my 2yrs of Ifn. I'll never forget how I felt after reading that article. Not only did I immediately feel that I was not alone, but I had an overwhelming feeling of, I guess, vindication. Now, after getting progressively worse over all these years, I just feel hopeless. But, I can absolutely attest to the fact that there are not only "thousands" of people like us... but more likely tens or even hundreds of thousands of people like us out there!

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Replies to "About 10yrs ago, I read an abstract of a study done of a few thousand patients..."

Thanks. I read about depression and “my bouts with mental troubles”. These stories always, always, always end with “and then I got better”. Or “this to shall pass”. Well, that doesn’t do me any good. Like you, it gets worse everyday. For over 20 years. So now I know someone who’s ending is like mine. Not good. I hear, “at least you’re cured”. Fuck that. I got cured from a disease that had no symptoms and now I’m screwed. For a very long time. Every day is struggle. I’m worn out and there’s no end in sight.