← Return to Post Interferon Syndrome

Discussion

Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (515)

Comment receiving replies
@colino

There aren’t many people posting here. Maybe they think only a few people suffer like this? Maybe they’re right? Maybe only a few of us do suffer like this. Maybe no one monitors the site?

Jump to this post


Replies to "There aren’t many people posting here. Maybe they think only a few people suffer like this?..."

About 10yrs ago, I read an abstract of a study done of a few thousand patients who had gone through long-term treatment with Interferon. In it, they reported that as many as 40% of these patients had a "syndrome" exactly like what we have. I was astounded! For many years, I thought I was the only one... or that it was either several conditions I had developed over time, or something entirely unrelated to my 2yrs of Ifn. I'll never forget how I felt after reading that article. Not only did I immediately feel that I was not alone, but I had an overwhelming feeling of, I guess, vindication. Now, after getting progressively worse over all these years, I just feel hopeless. But, I can absolutely attest to the fact that there are not only "thousands" of people like us... but more likely tens or even hundreds of thousands of people like us out there!