Post Interferon Syndrome

Dear Idstella. I take inspiration from you and admire your strength and courage. Here in the UK I have not yet found any campaign or organisation challenging the Merck company that manufactured the Interferon. Have I got that correct? I will need as much info as possible to bring this subject forward. In April there is a very big enquiry begining in London about the NHS Contaminated Blood scandal in which thousands of people became infected with Hep C and HIV via blood transfusions and blood products and hundreds of people have died. Many people are waiting for liver transplants and many others are fighting HIV and cancer. I will be contributing to this enquiry with my story. Wouldn't it be wonderful if an enquiry could be made about the Interferon Drug? At present I do not feel there is enough evidence to present a case except for research off the internet and this website. However I do belong to a group about NHS Contaminated Blood in which most members have similar stories regarding Hep C and post treatment so I feel this maybe a good starting point ? What do you think ? X

Dear Idstella. I take inspiration from you and admire your strength and courage. Here in the UK I have not yet found any campaign or organisation challenging the Merck company that manufactured the Interferon. Have I got that correct? I will need as much info as possible to bring this subject forward. In April there is a very big enquiry begining in London about the NHS Contaminated Blood scandal in which thousands of people became infected with Hep C and HIV via blood transfusions and blood products and hundreds of people have died. Many people are waiting for liver transplants and many others are fighting HIV and cancer. I will be contributing to this enquiry with my story. Wouldn't it be wonderful if an enquiry could be made about the Interferon Drug? At present I do not feel there is enough evidence to present a case except for research off the internet and this website. However I do belong to a group about NHS Contaminated Blood in which most members have similar stories regarding Hep C and post treatment so I feel this maybe a good starting point ? What do you think ? X

Hi, I am 7 yrs post INTERFERON/RIBAVIRON tx and my life is ruined! My memory is so bad now I have no idea why I walked into a room or where I parked at store. I was a thriving RN/MPH and now I have CVID from the tx's. I am in so much pain all of the time it's hard to function. My personality has changed, I now have an autoimmune dx called sjogrens syndrome...life is hell for me anymore. PLs let me know how u r doing n if u r going thru all of this...thx lisa

Hi Lisa, I too was treated for one yr. and now have sjorgren's and
many other weird illnesses. I actually could make a very long list. I also know that, after much research, we should be always followed for any signs of lymphoma. From my research, I know that the doctor I saw in Seattle did not follow ANY of the protocols a physician was supposed to follow to safeguard her patients against the deadly side effects of this deadly combo. I also know that for every prescription written she received $10,000!!!!
That a physician could still be treating patients is appalling to me to say the least. There is so much I'd like to say, but I am typing on my cell phone. I would love to connect with others who went through one yr. of treatment withthe highest dose as I did. I'd also like to file a lawsuit against the doctor and nurse who treated me for not following protocols in place. They SHOULD NOT BE ALLOWED TO BE IN A POSITION "caring for others." It was all a about money.

This is my first cell phone and it sucks. What does PM mean LOL. My sons r always teasing me and tell me I don't know what i'm doing. I need a computer to enable me to message easier. This one finger thing sucks!!! So kind of u to message back. I am very very angry about what has happened to ALL of us. I'd rather talk by phone. Hopefully, I can get a computer soon, I cannot do this one finger thing.

I went thru interferon ribivirian and incevick in 2011/2012 I wound up in a mental institution lost my mind was taken off the meds and sent home where I went into a year long clinical depression. The interfeone changed my life forever. I thought I could manage the mental diagnoses after interferon. However, now into my 9th year post I have suffered with chronic fatigue sent from one speaciliest to another they say its sleep apnea nope that's treated still exhausted . They say high blood sugars nope that's treated still exhausted barley able to function at work. The say I'm not disabled well there is something wrong I M not the carefree wild girl that went into interferon. All of my dreams were smashed and I have suffered every day of the last 9 years . I had no idea others felt this way as well