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Post Interferon Syndrome

Infectious Diseases | Last Active: Oct 7 9:13am | Replies (536)

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@marleneruth

I just found this site. I took interferon injections for 6 months, relapsed hep c, then one year of injections 3 mil units, 3 times a week. That was 1994-1996. Horrible suffering, for what? For years they denied long term effects. I could never return to nursing or any substantial work, I blamed myself and wihdrew from life. I knew it was the treatment, but who would listen. I suffer from most of the symptoms that I see others are suffering from. Neurologic peripheral and central, cardiac, muscle weakness, fatigue, sleep disorders, pain, psychiatric, vision. Not wanting to be the complainer, I withdraw. I want answers now. Thanks everyone for sharing. Things make sense now.

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Replies to "I just found this site. I took interferon injections for 6 months, relapsed hep c, then..."

Like you and so so many more of us post treatment. I went back to my GP several times each year since 2006 and never got anywhere. I had a brain tumour removed in 2000 and after therapy etc regained my driving licence and back to work for a few years before the treatment. So obviously over the years I pinned all my symptoms etc onto that operation pre treatment. It's only since I found this site that everything makes sense. We must all be strong and hope an investigation will begin like the infected Blood one starting April 2019