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Post Interferon Syndrome

Infectious Diseases | Last Active: Oct 7 9:13am | Replies (536)

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@jenglereckedbin

Hello egosta
I also have a similar story as do countless hundreds of others too. I was given blood transfusions in 1988 after childbirth.After which I developed extremely heavy ladies times. The treatment for that was iron supplements. Shortly after that I developed acute jaundice and was hospitalised but after several blood tests etc was dischargedwith no diagnosis.Eventually after much rest my body recovered and life continued and I had two miscarriages over the next couple of years both with haemorrhage. So I requested sterilisation as to avoid any further heart ache. Again I recovered and decided to train as a Nurse and succeeded. It was in 2003 my Hep C was diagnosed after a needle stick injury at work. Still I continued with my life and the Interferon and Rabivirin treatment began. It was hellish every side effect thinkable was endured. During that time a blood test result said undetectable but the treatment continued. Eventually after a year I became too ill to continue the treatment. During all of this my life was ruined my career was ended as I was deemed incapable to practice and was forced to early retirement . My marriage ended and I also lost my house. Those symptoms remained the aching bones the swollen belly digestive problems foggyness confusion panic attacks and of course the fatigue. I had my gall bladder removed as gall stones where suspected I was tested for cancer of my womb etc all negative results. Over the years and many many fruitless assessments from various GP appointments drew blank. So I gave up and accepted my ill health as my lot and at least I was cured of hep c . 12 years on my long term fatigue aches and pains and cognigitive problems remain. Later I found out my blood tranfusuion had been TRACED back to the USA by gender. Thousands of people also contracted HIV/AIDS and have died or are in final stages of cirrhosis. I'm one of the lucky ones that survived but waiting now for further tests and liver scan results from a review as in the UK much care is being employed to detect Hep C.now that the infected blood tragedy is acknowledged.The Heptologist assured me that the new drugs are much better but I'm not convinced......my heart goes out to all who were/affected by Hep C

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Replies to "Hello egosta I also have a similar story as do countless hundreds of others too. I..."

Hi.thats horrendous what u have endured ave been know where near that much suffering you have had to endure, but I have lived wife the longterm side effects of interferon and I have had chronic pain mood swings depression brain fog memory loss and I have been on and of painkillers for years , only last week I decided to give C.B.D a try its the none addictive extract from the cannabis plant its sold over the counter in my health shop , I have noticed a massive change in one week I feel alot more relaxed and happy for the first time in years the pain in my kneck and hip its none existing , if its a placebo effect them so be it this last week has been like a miracle