← Return to Post Interferon Syndrome
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Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)
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Replies to "Hi! I'm 3 years post interferon Alpha tx, 5 wk induction and 48 wks 3x per..."
I hear u my friend am 10 years since treatment and lost my marriage the doctor doesn't want to hear as you said it poisoned our body's
I understand your frustrations my story is similar and still have those lingering symptoms 12 years on and also severe head aches ?clusters?migraine? They can last a few days and come and go. No pain killers work. I cannot bend down and have to 'sleep upright. I have even had Brain scans but nothing has been found to find out why so my latest diagnosis was to try some neck exercises or have massage!!!
I am a stage 3 malignant melanoma survivor. I did the interferon and stopped in August of 2018. I still have side effects, blurred vision, chemo brain, neuropathy, bone and muscle pain very severe. Severe tiredness, heart rate stays around 99 to 110 all the time now. My life has changed to just trying to get out of bed and go to the couch. Before all this I worked 60 hours a week, doing contacts, negotiating, traveling, cost savings and avoidance, spreadsheets,etc. To having someone help me fill this out. We need answers and the drug company needs to own up to this. I am now trying for my disability due to all of this. I am so upset with the way I am now.