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Post Interferon Syndrome

Infectious Diseases | Last Active: Feb 16 8:38pm | Replies (512)

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@klk370

Lisa,
I do my best to keep my spirits up, even though i am in a very similar situation. I have a genuis IQ, which i never usually say, but saying it now because i can barely think straight half the time. I have terrible brain fog and memory problems. I was diagnosed with chronic fatigue syndrome and fibromyalgia, but also told these symptoms are a result of the interferon. Gastrointestinal problems and eyesight problems are also related to post interferon. I have been researching for years and would give anything to have not taken interferon. We are not alone. People all over the world are suffering similar long term side effects.
I cant undo what has already happened. All i can do is manage my symptoms as best i can and be grateful things are not even worse. No, it is not fair. Yes, there should be a lawsuit we could join. YES, they should be trying to figure out treatments to help those of us suffering years after treatment. Know that you are not alone. Ill keep you in my thoughts.
Krista

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Replies to "Lisa, I do my best to keep my spirits up, even though i am in a..."

I read these posts and I cry. I’m not alone

I am all for a lawsuit. There has been a major shift psychiatrically on some hardcore psychiatric meds since treatment in 2007. If there is any info regarding this contact me

Hi, my name is Deidre, I am new to this site but when I read what you said to Lisa it really hit home. I have all the same issues, chronic fatigue, vision issues, stomach issues, memory problems and now I am having balance issues and dropping things all the time. I have asked repeatedly (my doctor) if it could be the treatment and he says no, doubt it. He is a great doctor, has been wonderful to me but I live in PEI, Canada where not much happens, especially not research on medications. I have already said but I will say it again..the relief I feel seeing that I am not crazy is overwhelming. Thanks, Deidre

I used to be very intelligent as well, I have not been able to get lost in a book since I took that evil drug, ten years now.

Just found this site, has anyone found any help with memory loss after hep c treatment with interferon?
Treated in 2008.