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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@ldestella

Hi, I am 7 yrs post INTERFERON/RIBAVIRON tx and my life is ruined! My memory is so bad now I have no idea why I walked into a room or where I parked at store. I was a thriving RN/MPH and now I have CVID from the tx's. I am in so much pain all of the time it's hard to function. My personality has changed, I now have an autoimmune dx called sjogrens syndrome...life is hell for me anymore. PLs let me know how u r doing n if u r going thru all of this...thx lisa

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Replies to "Hi, I am 7 yrs post INTERFERON/RIBAVIRON tx and my life is ruined! My memory is..."

I've treated 2x with interferon and ribavirin Both treatments worked for 3 months Then back with a vengance.

Hi there. You are not goung mad there are hundreds probably thousands of people going through the same post Interferon treatment 😉

I believe there are probably thousands of people on the world suffering long term ill health since drug treatment for Hep C. There is much info on research to prove it. You are not crazy. It's only others sharing these worries that brings some solace

Yes. Probably thousands of us with similar problems as a result of the treatment . Interferon and Rabivirin

Hi Lisa, I too was treated for one yr. and now have sjorgren's and
many other weird illnesses. I actually could make a very long list. I also know that, after much research, we should be always followed for any signs of lymphoma. From my research, I know that the doctor I saw in Seattle did not follow ANY of the protocols a physician was supposed to follow to safeguard her patients against the deadly side effects of this deadly combo. I also know that for every prescription written she received $10,000!!!!
That a physician could still be treating patients is appalling to me to say the least. There is so much I'd like to say, but I am typing on my cell phone. I would love to connect with others who went through one yr. of treatment withthe highest dose as I did. I'd also like to file a lawsuit against the doctor and nurse who treated me for not following protocols in place. They SHOULD NOT BE ALLOWED TO BE IN A POSITION "caring for others." It was all a about money.

I did a year of treatment in 2008. I have had numerous side effects the worse one being the treatment damaged my bones, it is painful even to walk, my knees are now cracking which is a symptom I need to see a doctor for. I have proof, from my research, that the treatment does massive damage to your bones. Does anyone else have this symptom? It is awful to not have pain relief because of the opiate crisis.

Hello. I’m Dennis from Dayton Ohio. My pain most days a 10. My allergy to nightshades has been discovered! I’m still fighting. But running out of fight

Still suffering daily fro fibro created by pegysus interferon and ribavirin. Mood problems. Neuropsyiatric problems. Medicine resistant depression. Disability has denied me so many times.
No help from doctors, against Sanford policy to get involved in SS disability cases. So tired of pain . Any lawsuits for this dirty medicine? How are you?

I'm beyond beside myself cause I've been dealing with this since 2011 here we are 13 years later with a severe case of fibromyalgia I have lesions in my central nervous system I'm always in pain every day