Hello @paulajahlers,

I can only imagine worry and stress you call are undergoing! I'd like to extend a warm welcome to Connect and hope you find some reassurance in the fact that you've joined a wonderful, supportive community.

First, based upon the symptoms you are describing, I'd sincerely encourage you to read this information from Mayo Clinic; it details congenital heart defect, particularly Hypoplastic Left Heart Syndrome or HLHS:https://www.mayoclinic.org/diseases-conditions/hypoplastic-left-heart-syndrome/symptoms-causes/syc-20350599

This Page on Connect, https://connect.mayoclinic.org/page/hlhs/ has some incredible information and inspiring, positive stories of Mayo Clinic patients and parents of children born with similar congenital heart disease or defect. Here are links to a few stories:
– https://connect.mayoclinic.org/newsfeed-post/research-collaboration-gives-hope-for-future-of-babies-with-rare-heart-defect/
– https://connect.mayoclinic.org/newsfeed-post/novel-stem-cell-treatment-means-new-lease-on-life-1/
– https://connect.mayoclinic.org/newsfeed-post/mayo-researchers-use-stem-cells-to-try-and-heal-baby-lucas-heart-2cd273/

I'd like to introduce you to a few members who've written about various congenital heart problems. Please meet @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @michelle39 @gitanjali @nancyirene @grward @kelovich @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432. I'm also tagging Mentor @cynaburst, who may have some thoughts that might help ease your worries.

@paulajahlers, you are already doing the best things – waiting, supporting your daughter, and praying – and I know that the Connect community will also join you. The world of medicine has advanced in leaps and bounds, and if your child/grandchild has a congenital heart defect today, the chances are better than ever that the problem can be overcome and that he/she may grow up to lead a normal life. Is this your daughter's first baby? What precautions has she been advised to take before delivery?