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Looking for answers – granddaughter's heart

Heart & Blood Health | Last Active: Feb 9, 2018 | Replies (10)

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Hello @paulajahlers,

I can only imagine worry and stress you call are undergoing! I'd like to extend a warm welcome to Connect and hope you find some reassurance in the fact that you've joined a wonderful, supportive community.

First, based upon the symptoms you are describing, I'd sincerely encourage you to read this information from Mayo Clinic; it details congenital heart defect, particularly Hypoplastic Left Heart Syndrome or HLHS:https://www.mayoclinic.org/diseases-conditions/hypoplastic-left-heart-syndrome/symptoms-causes/syc-20350599

This Page on Connect, https://connect.mayoclinic.org/page/hlhs/ has some incredible information and inspiring, positive stories of Mayo Clinic patients and parents of children born with similar congenital heart disease or defect. Here are links to a few stories:

I'd like to introduce you to a few members who've written about various congenital heart problems. Please meet @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @michelle39 @gitanjali @nancyirene @grward @kelovich @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432. I'm also tagging Mentor @cynaburst, who may have some thoughts that might help ease your worries.

@paulajahlers, you are already doing the best things – waiting, supporting your daughter, and praying – and I know that the Connect community will also join you. The world of medicine has advanced in leaps and bounds, and if your child/grandchild has a congenital heart defect today, the chances are better than ever that the problem can be overcome and that he/she may grow up to lead a normal life. Is this your daughter's first baby? What precautions has she been advised to take before delivery?

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Replies to "Hello @paulajahlers, I can only imagine worry and stress you call are undergoing! I'd like to..."

This is actually my daughters 3 rd baby . I’m not sure exactly how this happened but when Our Daughter was just expecting she was working and contacted a Staff infection that they called Mrsa . We later found out in Dec about the heart and only having 2 ventricles rather then 4. The Doctors at the time transferred her to Specialist to start a plan .
The plan is to have her Deliver early and get the Bany over to the children’s hospital.
But I want to Yjsnk you for giving me hope that very possible. yet.

Hello @paulajahlers

I have been thinking about you and hope that your daughter is doing well. Has a date been set when the baby will be delivered?

I hope that all goes well for your daughter and her baby. I look forward to hearing from you when you are able to write again.