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DiscussionAre there any other pre-liver transplant caregivers out there?
Transplants | Last Active: Jul 29, 2018 | Replies (195)Comment receiving replies
Replies to "No , there is no Mayo clinic in our state . We have a hospital system..."
@myfriend If your friend is happy with the facilities available to her then that's the first step. If not she should check the SRTR.org site for transplants centers close to her and specifically look at those whose outcome is either "as expected" or "better than expected". I think there are only 6 in the country with the better designation, Mayo in Florida being one and there are a couple in CA.
She should also check on what the typical MELD score is in her region at which transplants generally occur. That can be influenced by blood type too but with those two criteria she should be able to get a good idea of where she stands and if she would be better off at a different transplant center.
Regarding being a support for her, just be there when she needs someone. My condition pre-transplant was better than would be expected but there were days when I would have really liked someone I could just talk to and express myself. I had people who cared, my husband, my son and daughter, but they really did not want to hear my feelings and fears.
JK