@gaylea1 We found out he had liver cancer May 30 if last year and went for his initial work-up to get listed the first week of July. Thankfully both our families and our kids are closer to Mayo than we are so we visit them. We're both working so that helps too. Though I'm not sure how much longer my husband will be as his"brain fog"is worsening and he tires quickly. It is stressful but for me prayer, yoga and going to the gym or for walks help. So does spending time with friends.
I hope this helps! Hugs!
JoDee

@gayleaf I know how the stress can be but stay strong. The time will come. Do you know the average MELD score at which transplants occur in your region? In my region, New England, it is in the low 30s. CA and NY are a bit higher but everywhere else is either the same or lower. I was fortunate at getting transplanted at 28 in Boston, probably due to being blood type B.
Stay strong. For me the worst side-effect, up until the end, was having an occasional HE episode. That was miserable but xifaxan helped it tremendously.
JK