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@chevynova67

Hello~
My husband got diagnosed on Halloween so we are very new to all this. I’m a mom of 5 kids and the stress of just them plus my hubs diagnosis is breaking me. He has had a meld score ranging from 22-24 since oct. only signs are jaundice, minor ascities and now a round of SBP. Dr said today for his evaluation to be coming soon. But he’s very against living donors. I on the other hand am very much for it. Our oldest son turns 18 on feb 16th so we are going to have him tested. I don’t even know where to begin with the transplant. Only thing I do know is that he has been sober since October 10.. and he has Medicaid insurance and dr said they will cover it?? Help??

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Replies to "Hello~ My husband got diagnosed on Halloween so we are very new to all this. I’m..."

@chevynova67 ...where are you doctoring? I know from what I have read that Mayo does accept Medicaid. When we did our initial work-up we met with a finance person who will explained it all to us.

I know some places do have age limits for living donors. Also, how does your son feel about being his donor? Our daughter spoke up immediately after hearing her dad needed a transplant, but our son is very apprehensive. He's going to be 25 on Saturday, and we have left the decision totally up to him. My husband hates the thought of our kids doing this for him, but will accept the gift.

Prayer has been a great source of strength for me and I am finding lots of support on here. Virtual hugs to you!! Stay strong....you can do this!

I've heard that some people are uncomfortable with living donors but I haven't heard why, do you know why your husband is opposed to it? Is it because it's a family member or would he feel the same about any living donor?
I donated a kidney to a stranger (I know her now!) almost 3 weeks ago. Everyone has a different experience but this was very easy for me. The 2 full days of evaluation testing at Mayo was harder on me than the actual surgery. I was in the hospital for less than 30 hours and went back to a limited work schedule yesterday.
I may have this wrong but I thought a nurse told me that for the donor, a liver grows back to its full size within about 6 weeks, Would your husband feel better about a live donor with that knowledge? I don't know if this site does private messages but if your husband (or son) want to talk to me about how I felt being a living donor, I would be happy to talk with either or both.

@mauraacro my husband doesn't like the thought of our kids or me having a surgery that isn't medically necessary for us. If something were to happen he'd never forgive himself. Also, the thought of someone else's body part in him creeps him out. Ha ha He is getting over this, though.

That's a good point about the surgery fear. It's not medically necessary for you but it is for him. I went in with complete faith in my surgeon but the actual surgery is the part that made me the most nervous. If this helps, Mayo will not let someone donate if they deem the risk too high for the donor. There is a whole separate team of doctors, nurses and advocates just for the donor and much of the testing is done to determine your risk and to make sure you have as much information as you need to make a decision. They almost go so far as trying to talk you out of donating to make sure that you don't feel any pressure to follow through after you have all of the info. At any point, up to wheeling you into surgery, the donor can back out.
I'm pretty sure the body part would also creep me out if I thought about it too much but I focused on the amazing process of transplants. The technology, education and skill that got us to the point that transplants can not only be done but are so successful is fascinating to me. I spent some time in the different museums and to see how far things have come is awe inspiring.
My recipient and I are almost complete opposites on paper. We joked about how my kidney may be intimidated by her extensive education or that she may have sudden cravings for snickerdoodles but so far, none of that's happened. I clean out cupboards and closets when I'm bored, she was hoping to acquire that too but no luck so far.

I went through the donor eval, so I know what you mean! My husband joked with me that they need to quit reminding me that I can change my mind. Lol

I have total faith in everyone at Mayo. They are the best in the world for a reason!

@chevynova67, During his evaluation process, all of his options will be presented to him/and you.

How to begin? My GI referred me to my regional liver transplant center. They guided me and gave me referrals and directions for everything. I just followed their 'orders'. Otherwise we would have been lost.
Rosemary

@chevynova67 how are things going?

Geez enough already...you are one special woman! Sometimes we have to get away from it all. If you do...this group is here. Breathe deep and ask for all of the help.you can. There are many that will help if you ask
Be strong...!