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Are there any other pre-liver transplant caregivers out there?

Transplants | Last Active: Jul 29, 2018 | Replies (195)
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@rosemarya

@jodeej
Hi JoDee. Welcome to Mayo Clinic Connect. You are among friends here on Mayo Connect. Connect is an online support community where patients from all over, share and support each other from their own experiences.
My name is Rosemary and I am a liver/kidney transplant recipient. I also live at a great distance from Mayo Rochester where I transplanted in 2009. That is why I became active in this community as a volunteer mentor-to be able to talk to and share with others. I am happy to help you in any way I can.

I extend my hand (virtually) and I understand what you and your husband are going thru.
How long has your husband been listed for a liver?

I look forward to talking with you.
Rosemary

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Replies to "@jodeej Hi JoDee. Welcome to Mayo Clinic Connect. You are among friends here on Mayo Connect...."
jodeej | @jodeej | Jan 29, 2018

Hi Rosemary,
He was just listed this past July, so we are only beginning the journey. It can be so over-whelming at times. We are very thankful for the Gift of Life house! It's so helpful with cost, but also the other people staying there are so kind and helpful.

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Rosemary, Volunteer Mentor | @rosemarya | Jan 30, 2018

@jodeej, I want to send you my prayers as you and your dear husband begin this journey.
Yes, overwhelming is a good word to describe the feelings and emotions that you both must be feeling-that is what my husband and I experienced.
I am happy that you have already discovered the Gift of Life House! My husband and I called the GOL our home in Rochester from late Feb - mid May in 2009. It is a place of peace and healing, and when there, you are never alone!
Love and support and hope are most evident within those walls. And the memories are within me even now, almost 9 years later.

I am going to be completely truthful by telling you that the stress and worry are going to be with you. The unknowing, I think, is the most difficult. The best planning is to talk, talk, talk to each other and share your fears and your prayers and your tears. Our friends thought that we were brave, but they did not see us holding on to each other crying together. In my situation, I became very critical, and we never gave up hope because our doctors and our nurses, our entire medical team remained dedicated to taking care of me in preparation for getting a successful transplant.

Please feel free to ask me any thing at all. I will share from my own experience when I am able.
Rosemary

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