Hi Rosemary,
He was just listed this past July, so we are only beginning the journey. It can be so over-whelming at times. We are very thankful for the Gift of Life house! It's so helpful with cost, but also the other people staying there are so kind and helpful.

@jodeej, I want to send you my prayers as you and your dear husband begin this journey.
Yes, overwhelming is a good word to describe the feelings and emotions that you both must be feeling-that is what my husband and I experienced.
I am happy that you have already discovered the Gift of Life House! My husband and I called the GOL our home in Rochester from late Feb - mid May in 2009. It is a place of peace and healing, and when there, you are never alone!
Love and support and hope are most evident within those walls. And the memories are within me even now, almost 9 years later.

I am going to be completely truthful by telling you that the stress and worry are going to be with you. The unknowing, I think, is the most difficult. The best planning is to talk, talk, talk to each other and share your fears and your prayers and your tears. Our friends thought that we were brave, but they did not see us holding on to each other crying together. In my situation, I became very critical, and we never gave up hope because our doctors and our nurses, our entire medical team remained dedicated to taking care of me in preparation for getting a successful transplant.

Please feel free to ask me any thing at all. I will share from my own experience when I am able.
Rosemary