Hello @skye13 -- Welcome to Mayo Connect. Connect is a good place to ask questions and learn what others with similar health problems are doing for treatments. It can be frustrating when you are not able to get answers and it's easy to feel down but you are not alone. It can sometimes be very difficult to get a diagnosis. Asking questions and being your own advocate is a good thing and can help you learn as much as you can about your health, diagnosis and possible treatments. There are a couple of discussion on Connect you may not have seen that might be helpful for you:

– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– MCTD (Mixed Connective Tissue Disease): https://connect.mayoclinic.org/discussion/mctd-mixed-connective-tissue-disease/

I’d also like to introduce you to a few active members talking about connective tissue disorders. Please meet @jewel8888 @luladavis @regeanna @faithandlove @jimmorris900 @judeeo @lisaann03 @reagan1mc. I hope they can offer some suggestions or information from their own experience.

Also, here are some Mayo Clinic resources on vasculitis that may be helpful:

-- https://www.mayoclinic.org/diseases-conditions/vasculitis/symptoms-causes/syc-20363435
-- http://healthletter.mayoclinic.com/editorial/editorial.cfm/i/350/t/What%27s%20new%20in%20vasculitis%3F/
-- Vasculitis: What you need to know - Mayo Clinic - YouTube

I'm also tagging @kanaazpereira to see if she has any thoughts on possible MCTD and vasulitis.

John