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Facial Swelling - no diagnosis

Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)

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@jessicap42

Just at the end of last year I presented with facial swelling as well. All of it mostly being my partoid glands on both sides if my face. After 2 months of running test and doing CAT scans and MRIs I finally got the diagnosis of sarcoidosis. It's a rare autoimmune disease. I was treated with a high dose of steroids which was tapered off over a period of two months which did take the swelling down. I'm not sure if this is what you have but it does sound somewhat similar to my symptoms as well. I had no other swelling other than that in the face. The doctor said that it was very rare for it to present the way that it did which is the reason it took them so long to diagnose me. I hope this helps. Best of luck to you.

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I forgot to mention that the final factor for the diagnosis was the results from a blood test they took. It's called the ACE levels. The results for this test took over a week to get back if I remember correctly.

Thank you for sharing your experience.