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Kidney transplant - The Journey from the Donor's Side

Transplants | Last Active: Jul 25 2:21pm | Replies (359)

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@contentandwell

@marvinjsturing If possible I would send out some feelers now. From what I understand the wait for kidneys is longer than the wait for livers, so if you can find a donor you can get one much more quickly than if you have to wait for a deceased donor. I presume since you are not yet on an active list you are also not on dialysis. I would imagine that can be very difficult but you can do it a home apparently.
JK

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Replies to "@marvinjsturing If possible I would send out some feelers now. From what I understand the wait..."

@contentandwell I am not on dialysis at this time, however, the reason I am on the inactive list is because when you have had pancreatic cancer, you have to be cancer free for 5 years before you can have a transplant. At one time, someone told me that the "cancer free date" was based on when I had my last chemo. That would have made my anniversary date December of 2019. Last month, when I went to Rochester for my semi-annual checkup, Oncology told me that the "cancer free date" is based on when I had my surgery. My surgery was done in June of 2014 so June of this year will be my 5 year anniversary. A couple of weeks ago, I wrote 2 letters about looking for a kidney donor. It was always hard for me to ask for help when I was healthy. In the last few years, I have learned to ask for help and accept help when it is offered. But it stills feels very strange asking people for a kidney. Maybe it is time to get those letters out again and review them one more time. I wasn't sure if Facebook was an appropriate way to get the message out, but I see in one of your previous posts that others are using it to inform people of their need. (When I went in for my evaluation, I was told that the wait for a deceased donor was 2 to 7 years.)

@contentandwell Just a gentle point of education, dialysis done at home is still dialysis. You can do home hemodialysis, or peritoneal dialysis which is done nightly with a cycler or by manual exchanges.
Ginger