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Kidney transplant - The Journey from the Donor's Side
Transplants | Last Active: Jul 25 2:21pm | Replies (359)Comment receiving replies
@beckyjohnson & @mauraacro I’m an organ recipient so maybe I shouldn’t weigh in here (deceased donor pancreas transplant). Now I’m waiting on a kidney transplant. I don’t know when and where it will come from. I’m listed, but am also looking for a living kidney donor. I am so grateful for my pancreas transplant. I had the opportunity to send a letter to the donor family to thank them, tell them about myself and extend an invitation for some follow up contact. This was done through a coordinator/social worker. I never got any response back. I’m just saying most recipients would like to meet &/or know something about the donor. It must be comfortable & agreeable for everyone involved. Mayo has so much experience with every kind of scenario I’m sure they will sort it out in the proper time and way for everyone’s best interest. What you are trying to do and have done is a tremendous thing. Thank you.
Replies to "@beckyjohnson & @mauraacro I’m an organ recipient so maybe I shouldn’t weigh in here (deceased donor..."
@cehunt57 @mauraacro 1st thank you very much for sharing. 2nd as a donor in process I'm always interested in knowing what the recipients thoughts are about donors. There is so much information out there coming from & about recipients but very little in comparison coming from & about donors. It is comforting & reassuring to believe most recipients would like to know their donor.
@mauraacro @cehunt57 Two thumbs up for "Of course you should weigh in here!" For sure things would be much easier if everyone was on the same page. It is sad that a two way connection didn't happen for you. A possible reason could be it's too painful for the family dealing with the death of a loved one.
It is because of you, other living donors and deceased donors that I have been given a new life. I haven’t heard back from my donors family. I do pray for them every day but I would love to meet them. Maybe someday.
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@cehunt57. Of course you should weigh in here! If everyone knew what was going on for both sides think of how much easier life would be.
I'm sorry that the donor's family didn't get back to you but am so glad that the donor chose to use the end of their life as a life saving method for others.
Good luck to you