I’m still exercising and no I have not started meds yet. I saw a Mayo movement specialist and he told me exercise and come back in a year. My local dr’s all want to start me on meds. My tremor in my hand may be a little worse, just taking it day at a time. The heat is really bad now.

@oronogo

I can empathize with you, Jane. The heat makes everything worse! I'm glad that you are exercising. If you feel any concern at all regarding the no-med advice you were given, please feel free to contact your doctor through a My Chart message or by a phone call to his office. I am sure he/she would want to know if any of your symptoms had worsened.

If I may ask, what type of exercises are you doing? Besides the tremors, what other symptoms are you having currently?

I look forward to hearing from you.

Teresa

Still maintaining my exercise routine biiking, walking, lifting weights. Not on the meds yet. Don't feel like I need them. I have had Loud therapy mostly for my voice, speak, and swallowing. Seems to be helping. I also have had BIg therapy - helps me stretch out my back when it stiffens. I continue to do balancing exercises as a proactive measure - although balance is not an issue...yet 🙂

Hope you are well - BTW my tag is @lsdempsey - not @lsdemspey

The tremor is the only symptom I have at this time. I’m doing Big hand exercise and stretching and balancing.

@oronogo That all sounds very good! I am pleased that all is going so well for you.

Teresa

Hi we may be at the same stage, my good luck to you! I too work out, stretch and do balance exercise, just an evolution of what I have done for many years. Everyone thinks it all helps and it certainly makes me feel better about myself. What is 'Big hand exercise' please?

Hello @napier

Welcome to Mayo Connect! I am Teresa, a volunteer mentor with Connect and also a Parkinson's patient. I'm pleased that you found our online discussion regarding Parkinson's.

How long ago were you diagnosed? I take it that you are currently just exercising and not using meds?

Have you taken the Big exercise program through a physical therapist trained in the LSVT Big Program? Here is a link to a Youtube video introducing the LSVT Big program, https://www.youtube.com/watch?v=fpTqcWs2NUY

I had not heard of "Big Hand" before however, I did find a hand exercise program on Youtube, here is the link,
https://www.youtube.com/watch?v=Ez2GeaMa4c8 I have tried it and it is quite good.

Do you have any problems with your handwriting (becoming very small, etc.)?

I look forward to getting to know you better and having you share about your experiences with PD on Connect.

Teresa

Hello Teresa, thank you for this. Is there a mechanism for us to have a brief private message or phone call, please?

@napier

While Connect does not encourage private messages because it is important for the whole Connect Community to be part of discussions you can private message me if you wish. At the top of the screen you will see an envelope. Just click on that and it will take you to the Private Message feature. You then click on "Compose" and put in the user name (in my case, @hopeful33250) and then fill in the subject line, and the message area. I will answer within a day or so.

Teresa