Connect
Has anyone been diagnosed with Abdominal Wall Pain
Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett's test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?
Like
Helpful
HugInterested in more discussions like this? Go to the Chronic Pain Support Group.
Connect
Hi rufus444, I posted to tigreyes in error, meant my reply to be to you
Hi donfeld, try reading the Mayo Clinic proceedings at this link: https://www.mayoclinicproceedings.org/article/S0025-6196(18)30671-2/fulltext It appears that the Mayo Clinic physicians don't talk to one another!
At this point I don't know what is causing my pelvic pain as I spent a lot time at Mayo and they hadn't discovered the problem. I don't have any abdominal pain and it's seems to be in my hip areas cause my lower back into my legs. Going for injections this coming Thursday and hopefully something will happen to get some relief. Thanks for your input and I hope you just get some relieved.
-
Like -
Helpful -
Hug
1 ReactionOn the contrary, I have found that the Mayo Doctors talk and refer to others commonly... The way that Mayo Pays the Medical Staff makes a difference .... it reduces competition ... they have always spent time talking to me as well... We, the patients, have to have the correct questions... K
-
Like -
Helpful -
Hug
2 Reactions@donfeld
I'm so sorry to hear about your pain. I can absolutely relate as I spent many years just labeled a "chronic pain patient" because nobody took the time to think out of the box a little bit. Pain really takes it's toll on a person. You may want to get a hold of the reports from any imaging you've had done over the last few years. Look to see if there are Tarlov cyst(s) noted on there. Take a few minutes to read about them and see if the symptoms compare to the ones you are experiencing. http://www.tarlovcystfoundation.org If there are some noted on your reports bring it to your Dr.'s attention. FYI most Drs know nothing to very little about Tarlov cysts and will tell you that it's not the cause of your pain and they don't cause any issues. If you feel like it's possibly what is causing your pain then move on to a different Dr. That's what most of us who have them have to do. Eventually you will find a couple that are willing to learn a little bit and work with you. It's really best to always request your records to have on had when seeing a new doctor. This includes the discs and reports from all of your imaging. When you go in for imaging just tell the tech. that you would like a report mailed to you and you would like a copy of the disc before you leave. Having your records, and especially having your imaging discs and reports ready for a new Dr. will probably save you some money. Sometimes that won't need to order new tests if you already have your records with you.
Sorry for blabbing on & on. Just trying to offer a little advice. I sure wish I knew about this site years ago. It would have really helped to be able to talk to others experiencing similar symptoms. I've only been a member for about 2 years. Take care and I wish you the best of luck!
Terri
-
Like -
Helpful -
Hug
1 ReactionHi ken82, glad to hear that's your experience. I have dx of A.C.N.E.S. confirmed by Univ Washington pain clinic. After reading Dr. Sweetser's article, I messaged him, respectfully requesting a referral for treatment (as he described in his report, "Surgical treatment with neurectomy is available for medically intractable abdominal wall pain"). I got a form letter of denial back from Mayo's Gastroenterology dept with no referral and no help. Baffling.
That is what I got from Mayo after they screwed up my surgery which caused a spinal leak that led to arachnoiditis.
Donfeld, I am speechless with anger over your post! Mayo HARMED YOU and has refused you help??? This is infuriating and-- pardon me-- but I am really enraged on your behalf!
@rritam
I was also turned away by Mayo Clinic but it was the neurology dept. I have Tarlov cysts pushing on numerous nerves in the sacral area. I called and asked if there was a provider that treats them. They told me they have done a few of the surgeries in the past but no longer do them. I also asked if any of the neurologists and/or neurosurgeons would be able to recommend what direction I should go or possibly a referral to another provider that has experience with them. There was no answer for me. I'm not badmouthing Mayo Clinic by any means because I did see Dr. Fealy back in 2003 (before I was diagnosed). He was fantastic and showed initiative in figuring out what was going on but I never got to follow up with him. I was very disappointed to find out that he retired.
Did you ever get treated for those cysts? I have this pain mostly in bed at night as I wake up every 2 to 3 hours.