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Tobramycin

MAC & Bronchiectasis | Last Active: Jan 22, 2018 | Replies (31)

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@windwalker

@luvocean, I am sorry that you are feeling so badly right now. I hope that your dr. can put you on an alternate drug to get you to feeling better by the holidays. Were you on anything else prior to the toby?

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Replies to "@luvocean, I am sorry that you are feeling so badly right now. I hope that your..."

Yes many but all are now resistant. I am now sick and had some Cup to on hand so taking it but its not belong so far. Can't get in to see anybody.

I meant to say Cipro (not cup). And its not doing much. I wanted to try Colisten but doctors are too afraid so far to risk the side effects.

@luvocean, wow, that sounds scary (being resistant to many antibiotics). Are you taking the inhaled form of Cipro? That is best because it delivers the medication directly to the lungs. Also, where do you go for treatment? Is your doctor VERY knowledgeable about MAC? It is possible that you may need IV antibiotics. Please keep us posyed on your situation.

Yes all other anti biotics like Cipro and Cefepime which I am now resistant to and t h e Cefapime am allergic to now.

Yes some other drugs related to penicillin like Augmentin for pneumonia. A nurse who does all the breathing tests suggested using a special men cup with the Toby that breaks it down to smaller particles. But the pharmacy no longer sends it and no one can find it. Still looking. Its called Pari LC Plus.

I didn't know you can inhale Cipro! I know that when I give a sputum sample the Dr has said that the pseudo is resistant. Maybe the inhaled version is better. I will mention it.