Thank you, Gina. I think I'll need all the luck I can get 🙂

@ginak Please let me know what your results are and what the doctor decides to do? This area really interested me since my National Jewish doctor thought the cause of mine was also silent GERD but since that appears to be the go to diagnosis at National Jewish, I was a bit skeptical and my local pulmonologist, who is also an NTM specialist, was also skeptical. To confirm the diagnosis I went to a GI specialist at our Medical University and did the 24 hour PH test plus some kind of motility test where they put the tube down you throat. It wasn't pleasant but worth it. My GI specialist said that it showed I have very mild GERD and no motility issues and she doubts that I am aspirating. She did recommend to stop eating and drinking 3 hours before bed and I do sleep on a wedge as prevention. Best to you.

@jenblalock I will let you know. My pulmonologist wants me to have the video fluoroscopy but said nothing about any other type of test. Right now, I’m having trouble getting the referral for my insurance. Pulmonary says primary has to order it and primary says pulmonary has to order it since he’s the one requesting it. So I’m still waiting. Tuesday I go to the Gastro so maybe he can order it and I can finally get it done. I also now sleep on a wedge, and try to avoid eating or drinking 3 hours before bed. I guess no one REALLY knows the cause and they’re all trying to find some commonalities between all of us.
Gina

@ginak Agreed regarding commonality and to check for GERD is prudent which it sounds like your doctor is doing. I get skeptical when a doctor says they are 100% certain that is the cause without the proper testing to back up that diagnosis.