My name is Tom, I am 68 years old and have been diagnosed with MAI. I had a CT scan in May (annual lung cancer screening because I was a 50+ year smoker) which showed a suspicious nodule in the upper right lobe. A PET scan was done in June and it indicated cancer, however, apparently MAC and MAI can mimic cancer in a PET scan. I was supposed to have a lobectomy in July, but the surgeon decided that he could get the spot out with just a wedge resection. I have a nice 9″ scar across my back and right side now. The pathology report reached us in early September, indicating mycobacterium avium intracellulare complex, or MAI. A followup CT scan in October showed what my doctor called “a tiny spot” that was in the same lobe, only lower. If I would have gotten the lobectomy that was planned, I may not be here now. Swell, huh? Anyway, I just had another followup CT scan yesterday because the doctor wanted to see if that tiny spot changed at all, or if more spots developed. I was disappointed to not start an antibiotic regimen immediately, but I went along with the doctor’s plan. So. Awaiting results of the last CT to see where to go from here.
I have read some of the information on side effects of antibiotics here on these forums, and I am a bit concerned, but I believe that attitude is everything and I’ll be just fine in the end. Besides, I am taking 85 billion live cultures of 32 probiotic strains every day. I think that will help.