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Kikuchi disease

Autoimmune Diseases | Last Active: Dec 12, 2023 | Replies (25)

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@twin1095

Hi, my child also has Kikuchi and it breaks my heart to read this about your daughter. I would love to know how she is doing now!

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Replies to "Hi, my child also has Kikuchi and it breaks my heart to read this about your..."

It took her almost 2 years before her symptoms were gone. Then she got mono. Her freshman and sophomore years she pretty much did homebound and a tutor from the school came 2 days per week. Her junior year she got mono the end of October and became very run down and was out of school until after Christmas. Then came CoVid and they sent her home right away due to health concerns and then all of the schools closed a short time after. This year... she is a senior. She is doing distant learning due to our concerns of "what if" she gets sick. Will it cause Kikuchi to become active again? She still has periods where she gets rundown, gets a little achy and has headaches. Where it is related to kikuchi who knows. We just hope it won't return and/or she doesn't develop lupus. We've been told her chances are a little higher because I have lupus and I just pray she doesn't get. She's had a long road and has struggled with friends because she missed soo much school and was too sick to do anything. Now we worry because she's supposed to start college next year but because of missing so much "teaching" on a daily basis her grades suffered. But I am happy to say she is a happy girl, kind, big hearted and such a good kid! She does however worry about getting sick, every time she has any symptoms of a cold she gets anxiety. Hopefully that will fade as time goes in.