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On going shortness of breath

Heart & Blood Health | Last Active: Apr 23, 2018 | Replies (59)

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@hopeful33250

Hello @racerjon

Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you have had. Also, a Pulmonary Stress Test can pick it up as well. Here is some info on pulmonary hypertension, https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697

I hope that you will post again after your cath on the 15th. I would appreciate knowing how you are doing.

Teresa

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Replies to "Hello @racerjon Pulmonary hypertension can usually be picked up with an Echo, which I'm sure you..."

Thank you Teresa. I will definitely post after the cath how things went and if it is in fact PH.

Well, I'm still at a standstill. I had a right heart cath done yesterday and sure enough, it showed no pulmonary hypertension. This is bringing back memories as a child. I started having epilepsy at eight years old. Test after test showed nothing wrong. I was told I was acting out for attention until finally, at 13 years old, an EEG showed brain damage on the right temporal lobe. This is where I'am today. No one believes me that I can't breaths and since the tests show nothing, then there is nothing wrong.

I have the same problem, sorta kinda, first they told me that I had Pul. hypertension and after several years they did another RT CATH and said I didn't, I also have trouble breathing at times...have you seen a pulmonologist yet? I think they probably believe you but if their test is negative then they should look at other possible causes.

Yes, I have seen a pulmonologist. It was her who told me all the caths I've had were on the left side and I need to have a right side done. They did that yesterday and said I didn't have PAH. I'm beginning to think it all the medications I'm taking. They once put me on Renexa to try to help with the angina. One of the first warnings with Renexa is "Do not take this medication if you take Dilantin for seizures". Guess what I take for seizures? I don't know what or who to believe anymore. If I had the money I'd call for an appointment right now. I have reached the and of my rope with this.

Where are you located?

I'm located in NE Tennessee right near Virginia and North Carolina.

I had high pulmonary pressures 13 years ago and still do. Had the catherization done and was told I did not have pulmonary hypertension. Well, in 2015 I experienced Afib and long story short I went to Mayo. They found I have heart failure. Also, I have pul hypertension. I was told that because I was given a sedative for the previous catherizaton that is what brought my pressures in the normal range. Not sure this could apply to you but just letting you know.

Thank you so much for the information. This use to be frustrating. It is now angering me. (I know that is now good for me either)