Hello Teresa, Yes, I am in continual contact with my gastroenterologist. He is at a standstill as to an answer for me. I have had numerous testing and everything comes back normal, no answers. He has diagnosed me as having GERD but none treatments do not help. I DO NOT experience heart burn, or acid reflux with these episodes. I had a microscopic removal of my gall bladder in 2005. No stomach or abdominal surgery. I do have a hernia just above my navel, but Primary and Gasto says it is of no cause to what I have been experiencing for approximately 4 years, as well as response of my Primary. It comes and goes, usually staying for 3-4 months, then goes away, then comes back. I did have Chemo in 2010 for Large B Cell Lymphoma, 1st stage. VERY HEAVY doses of Chemo, 5 - 4hr hour sessions. I have been clear for 7 years. I am in constant connection with Oncologist. I also have AfiB, using Tikosan and Eliquis for heart. In continuous connection with Coronary Dr. Have talked with all three of my Drs. CONTINUALLY with this shoulder problem. I am beginning to think it may be a nerve problem and am in the process of contacting a Neurologist after referral from Primary. Thank you for listening to my tale of WOE. Judy

@jrofri

Mayo Connect is here to hear everyone's story - I wish there were some easy answers to your problem but it sounds as if you have covered a lot of territory with specialists and medical tests.

It looks like there have been some posts from other Members recently. Perhaps you will find something that will strike a familiar chord.

The one thing that most of us at Mayo Connect have found to be true is that when a reason or diagnosis isn't obvious to persist and keep looking.

Are you able to go to a large medical research center of university medical school? Often these venues have lots of varied experiences with hard-to-diagnose disorders and can be quite helpful.

Teresa

I also had chemo 10+ y ago. And radiation. Perhaps it caused a change leafing to the shoulder problem 

Hi Judy,
I don't want to send you off in a different direction, but a colleague of mine suffers from a condition called "frozen shoulder" which is now spreading to her other shoulder. Her symptoms sound similar to yours and it may be something for you to explore?

@marlaxyz

Was the radiation given in or near the shoulder area?

Teresa

Marlaxyz@Marlaxyz Hi, Thanks for your suggestion. I asked my Oncologist that question today about chemo (7 yrs ago) related to gastro/shoulder pain after eating. He said he could not correlate the two issues and dismissed my shoulder pain issue. Thanks for the suggestion. Judy

I try to ask the same question of different mds. Having misdiagnosed in a very grave error (no pun intended) i am wary of doctors and suspect shenanigans. You know your situation best. Wishing you excellent luck with all this.

thank you. I am going to discuss with a PT

No, pelvic area. But i found that the effect of radiation are widespread.

BTW, there is another disease called MALs which seems to have similar symptoms. I haven't really checked it out yet. The md i discussed it with didn't have info and there are some tests re hiatal hernia that are next in priority.

@marlaxyz There is a MALS discussion group on Mayo Connect. You might get more insight from that group. @kariulrich is a Volunteer Mentor who knows something about MALS. Perhaps she can offer you some suggestions.

Teresa